Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Latest Discussions

AMS 800

Has anyone had an AMS 800 & what have been your results? Has any one had trouble with the device? I have one nearly 5 yrs ago & I seem to be having troubles with it but not 100% sure if its the device or just physical changes within my body I am 62 …

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1 Reply · Reply by Steve Dawson 23 hours ago

Trouble urinating

My brother-in-law was diagnosed with T4 prostate cancer some months ago. He has no family apart from my husband and me and our children. He has decided not to have any medical treatment and we must accept that our role is to support him in this. So…

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10 Replies · Reply by Sandcat on Monday

Young and worried

PSA Nov 2016 - 4.04 Jan 2017 - 5.7 Feb 2017 - 5.2 (with antibiotics) Mar 2017 - 4.02 (with antibiotics) After the last course of antibiotics symptoms felt improved but suddenly came back in full again. Im worried that the PSA only shot up because I…

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12 Replies · Reply by Axz on Sunday

relationship break down after prostectomy

Hi -  I had a radical prostectomy at 53 I am now 56. I survived the cancer but my relationship with the women I loved did not. Men need to be ready for this eventuality. Women have needs,  it is only natural, but this does not make it any easier to…

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21 Replies · Reply by jrose Jul 15

Successful Alternative treatments?

My 88 year old partner was recently diagnosed with an aggressive prostate cancer after 3-4 years of "watchful waiting". His PSA started at 8, then 13, 18, 20, 30, 40, then 51 on diagnosis! He has started hormone therapy and has been okay with this…

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4 Replies · Reply by Kay Cee Jul 13

Active surveillance

Hi, I have had a slowly rising PSA and now have just had a biopsy. It shows a low to medium cancer over a portion of my prostate. I do not have the scores etc yet that often are quoted on other posts. My urologist has floated the possibility of an…

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8 Replies · Reply by John Lambert Jul 7

House Rules

To help keep this forum a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum. For further information please see our terms and conditions.

Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

Our online forum is for you to share experiences with others and does not contain specialist medical advice. We encourage you to seek advice from medical professionals.

No commercial or promotional activity. While members may share information about resources they have found helpful, the PCFA Online Community forum should not be used for the promotion of goods and services. This includes commercial entities passing themselves off as individuals and people who frequently post links to external websites.

Be kind to each other - many people using the forum are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.

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Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.

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