Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Latest Discussions

Costs of Treatment

I'd just like to ask how can the average person afford all this treatment?  I've been reading for days about the various treatment options we might have but I've come to the conclusion it all boils down to what you can afford, not what the best…

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24 Replies · Reply by awinner 4 hours ago

What comes next?

cancer discovered feb 2016, PSA 46. gleason 5+4 hormone therapy straight away. PSA 16 then 8 weeks radio therapy. fast forward now PSA 6.7 and very slowly dropping. My question is, Is anyone else in or has been in a similar position, I'd like to…

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0 Replies

Just Diagnosed, what next?

Hi All, Just joined today Sat 19Aug. 2 days ago I was told I have prostate cancer. Gleason scale is 8, Dr says moderately aggressive. Yet to have full body scan for secondary cancer. Also have appt to see oncology Radiologist in 2 weeks. First year…

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77 Replies · Reply by Danny1 yesterday


Hi Guys, has anyone had experience with a Nanoknife procedure for prostate cancer?If so would you share your thoughts on the procedure and how much of the cost was shared by Medicare and NIB health cover in Queensland...Thanks..

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9 Replies · Reply by awinner on Saturday

Active surveillance

Hi, I have had a slowly rising PSA and now have just had a biopsy. It shows a low to medium cancer over a portion of my prostate. I do not have the scores etc yet that often are quoted on other posts. My urologist has floated the possibility of an…

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17 Replies · Reply by jrose on Friday

Lack of libido

I’m 12 months along now from brachytherapy followed by a course of external beam radiation. There was no question that I needed treatment (i.e. 'active surveillance' wasn't an option) - my PC was at T3a stage and all the indicators were there, PSA,…

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0 Replies

Flogging a dead horse.

G'dayI can only speak from my own experience. ED recovery is slow and it may appear like your flogging a dead horse but it does get better.( pun intended) I'm 9 months post op and I'm just seeing a change.I'm a G9 excapular extension and I went into…

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25 Replies · Reply by Cobblerdave Nov 11

Penile Shrinkage

Diagnosed June 2014 , T2c Gleeson 3+3=6 While my urologist did make a passing comment about penile shrinkage after the radical prostatectomy and suggested I talk with a men's sexual help specialist, I was totally unprepared for the results.  I am…

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26 Replies · Reply by Alan Ronald White Nov 10

House Rules

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Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice.  If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.

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