Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Latest Discussions

Advanced, young, no prostatectomy

As far as I'm aware I'm one of a relatively rare group of younger guys that are diagnosed with advanced aggressive prostate cancer when they first present to a doctor.  The primary tumour is small (so there is no point doing a prostatectomy) but has…

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13 Replies · Reply by maffy on Tuesday

A Younger Mans Journey

HI everyone. I've started this discussion to provide some details about my Prostate Cancer journey as a 41 year old. I know there is others younger that go through this as well, however their stories and information is spread thin across the…

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57 Replies · Reply by Cobblerdave Mar 24

Sorry I didn't get it

G'day https://herecomesthesun927.com/2016/11/14/dear-every-cancer-patient-i-ever-took-care-of-im-sorry-i-didnt-get-it/ Hopefully this will link. If not copy/paste as it's a good read. It's the experience of enology nurse diagnosed with cancer. What…

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0 Replies

Postive Recovery

At four weeks post radical prostatectomy (robotic) I have predominately positive things to report. Apart from urinary incontinence the greatest discomfort was shoulder pain (apparently due to dissipation of gas used during surgery) and having a…

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3 Replies · Reply by Big Kev Mar 23

Flogging a dead horse.

G'dayI can only speak from my own experience. ED recovery is slow and it may appear like your flogging a dead horse but it does get better.( pun intended) I'm 9 months post op and I'm just seeing a change.I'm a G9 excapular extension and I went into…

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17 Replies · Reply by maffy Mar 16

What is HDRT Procedure

I have a PSA of 12 - Up from 6 I have just been informed my Gleason is 9 2 Local spots & HDRT recommended. The Urologist talked more about an op he did in 1995 (3 Times) & Mentioned most of the On Line Info was "B######T" I'm a Public Patient in…

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5 Replies · Reply by Wayne J Mar 15

Slow Recovery from Incontinence

It's over 4 months since my Prostatectomy and I'm not really recovering from Incontinence. I'm wearing a Weisner penile clamp. Without it I leak constantly with no bladder retention at all unless I'm sitting or lying down. I'm dry at night. I also…

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14 Replies · Reply by PeterW672 Mar 14

Our story with prostate cancer

Hubby was diagnosed with prostate cancer 12 months ago after we were seeing a rise each time in PSA  after he would have his yearly PSA blood test -just small increments over about a 5 year period, nothing big on his blood test results.  His family…

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3 Replies · Reply by GenRose Mar 12

Urethral cuffs and such

Recently, five years after a prostatectomy and followup pelvic radiation, I discovered the hard way that I was suffering from radiation cystitis (when I started peeing copious amounts of blood). Repeat catheterisation has damaged the scar tissue and…

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7 Replies · Reply by Patrick Turner Mar 12

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