Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Latest Discussions

Should I or shouldn’t I ?

Hi, I am 50 years of age, diagonised with prostate cancer 18 months ago. Had two biopsy’s and now Gleason 7 from 6. Psa around 5. Father passed away at 76 due to prostate and brother getting his removed this week at 61. My doctor not very…

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10 Replies · Reply by JB yesterday

8 Weeks Since Procedure.

8 weeks ago,I had a Robotic Assisted Prostatectomy amd Lymph Node Dissection.  I must admit that prior to the surgery, I was a bit apprehensive about the outcome. One month prior to the procedure, I had a meeting with a physiotherapist and discussed…

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7 Replies · Reply by Jonnie J yesterday

Seeking advice

Hi I’m 59 and my father and brother both were diagnosed with prostate cancer, my father in his mid seventies and dying of lung cancer at 87 and my brother at 64, his cancer was confined to the prostate, he decided to have a robotic guided…

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19 Replies · Reply by Ian Aug 12

What next when Lutetium-177 fails?

I have been taking part in the ANZUP clinical trial to compare results of treatment with Lutetium-177 or Cabazitaxel for those with castrate-resistent metastatic prostate cancer.  After five treatments of Lutetium, my oncologist said, "the disease…

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9 Replies · Reply by Aligra Aug 12

cost of surgery

I have had a Robotic Radical Prostatectomy earlier in 2019 and experienced surgeon quotations varying from $7,800 to $29,000 for apparently the same operation.  The estimated rebate for this is $2,300 leaving a very large "out of pocket"…

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4 Replies · Reply by Peter Aug 10

Incontinence Sheath

Hi. 47 yrs old and going in for robotic surgery next month for moderately agressive contained but near the edge of prostate just wondering if anyone has used a urinairy sheath, condom external catheter bag type thing. and how it compared to pads,…

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17 Replies · Reply by JohnTW Aug 10

House Rules

To help keep this forum a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum. For further information please see our terms and conditions.

Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice.  If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.

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