Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Latest Discussions

Invitation to share my journey

Hi All, I hope everyone is doing well, under the circumstances.  I thought it may be helpful to share my blog.  It's about my journey with prostate cancer. I'm 48, three kids, Gleason 3+4 and had radical prostatectomy via robot at the end of…

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4 Replies · Reply by GraemeO 19 hours ago

Penile Shrinkage

Diagnosed June 2014 , T2c Gleeson 3+3=6 While my urologist did make a passing comment about penile shrinkage after the radical prostatectomy and suggested I talk with a men's sexual help specialist, I was totally unprepared for the results.  I am…

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48 Replies · Reply by nick on Thursday

When to talk to an Oncologist?

Greetings all, I had prostate removal in May 18 aged 58 following a 4+3=7 biopsy result. My first post op psa was 0.04, followed by two readings at 0.03. Today the reading had jumped to 0.07. The urologist wants another psa test in 3 months before…

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4 Replies · Reply by Andrew Jun 19

Husband recently diagnosed

Hi All,   My husband is 44 years of age, active, fit and recently diagnosed 3 days ago with prostate cancer.  We only have the bone scan results, which came back that he has a lesion on each hip. No MRI or PET scan results yet. We are to see…

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18 Replies · Reply by SteveCavill Jun 19


Hi all Would love hear how other couples are doing with intimacy. My partner had a radical prostectomy 5 years ago and has recovered really well and is able to have intercourse without medications which has been wonderful but did take 18mths to 2…

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15 Replies · Reply by rose Jun 18

Seeking reassurance.

G'Day all, I am 61 year of age, have a PSA reading of 7.8 and after an MRI scan have been diagnosed with prostate cancer. According to the scan, the right lobe is very enlarged with a slight sign of change to the left side. My main issue is not…

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55 Replies · Reply by Peter D Jun 17

Active surveillance option

Gday I am 58 and was told two weeks ago that I had prostate cancer. Bone and ct scans have confirmed the cancer is localised. I had 5 positive core samples from 14 with a Gleason score of 6 (grade1) and a PSA of 4.9. When I had my initial…

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10 Replies · Reply by Damo Jun 17

Informing sons of family history

Hi.  I was recently diagnosed with low grade prostate cancer, Gleason 6. Now under active surveillance with urologist.  My father and brother also developed prostate cancer.  I have four adult sons, I have been informed by Attila on this site that…

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6 Replies · Reply by Ian Jun 13

House Rules

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