Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Latest Discussions

Sural nerve graft

Guys, New to this.   Please check out 'my story' on my page (theHman) in relation to 'new 'surgery for getting your sex life back ... Happy to help where I can, Cheers

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1 Reply · Reply by KAB yesterday

Gay Mens Prostate Support

Hi Guys. Whilst most of what Gay and straight men go through with prostat cancer is the same there are quite a few differences that makes this experience unique. I have found a very small Face Book group for gay men called "surviving prostae cancer…

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0 Replies

Drug treatment after Radio Therapy

I have just finished 9 weeks of RadioTherapy and have been advised to stay on Zoladex for another 2 or 3 years. I am concerned about the long term side effects - Memory Loss, Bone Thinning and general loss of energy, hot flushes etc. Anyone have…

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0 Replies

Osteonecrosis of the jaw.

Hello everyone just joined the group. 54 yo diagnosed with inoperable stage 4 prostate May 2017. Chemo and zometa and zoladex. Lots of side effects which im dealing with but latest one is not good. Have osteonecrosis of my bottom jaw from the…

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3 Replies · Reply by Barry on Thursday

Active surveillance

Hi, I have had a slowly rising PSA and now have just had a biopsy. It shows a low to medium cancer over a portion of my prostate. I do not have the scores etc yet that often are quoted on other posts. My urologist has floated the possibility of an…

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44 Replies · Reply by CraigM Nov 12

A Younger Mans Journey

HI everyone. I've started this discussion to provide some details about my Prostate Cancer journey as a 41 year old. I know there is others younger that go through this as well, however their stories and information is spread thin across the…

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117 Replies · Reply by Cozza Nov 10

House Rules

To help keep this forum a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum. For further information please see our terms and conditions.

Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice.  If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.

No commercial or promotional activity. While members may share information about resources they have found helpful, the PCFA Online Community forum should not be used for the promotion of goods and services. This includes commercial entities passing themselves off as individuals and people who frequently post links to external websites.

Be kind to each other - many people using the forum are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.

Speak your mind freely, but please be sensitive to the feelings and experiences of others - you might not always agree, but you can agree to disagree in a peaceful manner.

If you or someone you know is suffering from mental health issues, such as depression or anxiety, we encourage you to seek assistance and contact Beyond Blue Tel:1300 224 636  or Lifeline Tel:13 11 14 

Don't use offensive language - if a user is found to be using offensive language during their conversations the moderators reserve the right to edit the thread, without warning.

Don't use all capital letters in your posts - it's considered ‘shouting' online and it makes posts difficult to read.

Give each other the benefit of the doubt - please remember that it is all too easy for the tone and meaning of posts to be misinterpreted. Think carefully before replying to a discussion. Likewise it is important to remember that things written rather than said can feel much stronger, so please bear this in mind when reading other people's messages.

Please respect the moderators - their job is to keep the forum safe and constructive so that everybody gets to have his or her fair say.

Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.

Don't start a new topic if your post relates to an existing one - reply to the existing thread instead. Make sure you reply to the appropriate post, not just the last post in the thread.

Please try not to use abbreviations - Please try to use correct punctuation in your posts – long sentences with no commas or full stops can be confusing and difficult to read.

Read what's already on the forum before posting - you may be repeating what others have already said or asked.

We want PCFA's Online Community to be a secure and helpful environment for all of the community. So please remember that by using PCFA's Online Community you are agreeing to follow our terms and conditions.