Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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I am now 80 and was diagnosed in 2014 with Gleason 8. I had radiotherapy which failed and my cancer spread. I had a treatment of Lutetium (Theranostics) in 2017 which reduced tmour density by 80% and my PSA dropped to normal levels and my Testerone…

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1 Reply · Reply by Barry yesterday

Incontinence Woes

I prepared for my robot assisted laparascopic radical prostatectomy by consulting with a physiotherapist, doing pelvic floor exercises for almost 5 weeks and continuing with my normal 5km walk each night. I was fairly confident that I would get a…

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16 Replies · Reply by bagman yesterday

Focal therapy’s

I had appointment with urologist at public hospital today I asked them about focal therapy’s and the urologist she didn’t know much about it , so that tells me it won’t be comming to any public hospital soon ! Its like let the prostate cancer spread…

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18 Replies · Reply by CraigM on Thursday

Robotic or Open Surgery or what

New to this forum so here is an introduction for further discussions and asking feedback on the questions I pose at the end. I found each practitioner is biased towards their preferred surgical method despite claiming they can perform either.I am…

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11 Replies · Reply by bagman on Thursday

My Cancer Journey So Far

My Cancer journey so far. This is what happened to me, please make of it what you will. Currently 64 years old.   General health has been good up to last year. In 2014 my PSA reading was 3.6 In November 2016 my PSA had risen to 12.  December 2016…

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5 Replies · Reply by joanmc on Tuesday

Second Opinion ?

Hi all, its been awhile since my last post as I have been doing "everything" I can post removal surgery around 9 months ago. My first post test was PSA of .11, monitor the doc says, then 3 months later .12, monitor he says. Then last week .15. I…

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10 Replies · Reply by bagman Jan 12

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