Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Latest Discussions

Rhino 4WD

Rhino 4WD is the best 4WD accessories online store to buy 4 wheel drive accessories and make your 4wd stand out from the rest without overpaying! With fast same day shipping from Sydney, Brisbane, Melbourne, Perth, Adelaide. Rhino 4WD focus on…

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Seeking reassurance.

G'Day all, I am 61 year of age, have a PSA reading of 7.8 and after an MRI scan have been diagnosed with prostate cancer. According to the scan, the right lobe is very enlarged with a slight sign of change to the left side. My main issue is not…

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15 Replies · Reply by Barrie Heslop yesterday

Prostate cancer at 43

Hi there, I have recently been diognosed with medium level prostate cancer with a Gleeson score of 3+4. All scans and biopsy indicate the cancer is contained within the prostate and prognosis is good with surgery. I’m interested in hearing feedback…

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45 Replies · Reply by Mick on Friday

Invitation to share my journey

Hi All, I hope everyone is doing well, under the circumstances.  I thought it may be helpful to share my blog.  It's about my journey with prostate cancer. I'm 48, three kids, Gleason 3+4 and had radical prostatectomy via robot at the end of…

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2 Replies · Reply by Big Kev Dec 12

WONDERING?? ONLY 53?

History.  PSA 4.1, three months later, 4.6. at 52 years old. went to urologist, biopsy revealed 1 x tumour with gleason 7. did some alternate treatments with tablets etc psa lowered to 4.5 in November 2016. in april this year psa 8.1.  Went and had…

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28 Replies · Reply by paul1964 Dec 11

Locally Advanced no prostatectomy

Hi all, I read these forums about once a month and good on you all for sharing this all helps. I do seem to be a rarity here but I am locally advanced with no surgery just EBR and ADT combination. Am I missing something or are there others already…

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5 Replies · Reply by MuzzaP Dec 11

Transurethral Hyperthermia

Just updating the Forum since having Transurethral Hyperthermia in Germany in February 2018. The treatment lasted 5 days. It included 2 three hour sessions of Transurethral Hyperthermia (TUH) and 5 one hour daily sessions of Hyperthermia. There was…

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18 Replies · Reply by Michael H Dec 7

Drug treatment after Radio Therapy

I have just finished 9 weeks of RadioTherapy and have been advised to stay on Zoladex for another 2 or 3 years. I am concerned about the long term side effects - Memory Loss, Bone Thinning and general loss of energy, hot flushes etc. Anyone have…

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2 Replies · Reply by Ganesh Dec 7

House Rules

To help keep this forum a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum. For further information please see our terms and conditions.

Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice.  If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.

No commercial or promotional activity. While members may share information about resources they have found helpful, the PCFA Online Community forum should not be used for the promotion of goods and services. This includes commercial entities passing themselves off as individuals and people who frequently post links to external websites.

Be kind to each other - many people using the forum are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.

Speak your mind freely, but please be sensitive to the feelings and experiences of others - you might not always agree, but you can agree to disagree in a peaceful manner.

If you or someone you know is suffering from mental health issues, such as depression or anxiety, we encourage you to seek assistance and contact Beyond Blue Tel:1300 224 636  or Lifeline Tel:13 11 14 

Don't use offensive language - if a user is found to be using offensive language during their conversations the moderators reserve the right to edit the thread, without warning.

Don't use all capital letters in your posts - it's considered ‘shouting' online and it makes posts difficult to read.

Give each other the benefit of the doubt - please remember that it is all too easy for the tone and meaning of posts to be misinterpreted. Think carefully before replying to a discussion. Likewise it is important to remember that things written rather than said can feel much stronger, so please bear this in mind when reading other people's messages.

Please respect the moderators - their job is to keep the forum safe and constructive so that everybody gets to have his or her fair say.

Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.

Don't start a new topic if your post relates to an existing one - reply to the existing thread instead. Make sure you reply to the appropriate post, not just the last post in the thread.

Please try not to use abbreviations - Please try to use correct punctuation in your posts – long sentences with no commas or full stops can be confusing and difficult to read.

Read what's already on the forum before posting - you may be repeating what others have already said or asked.

We want PCFA's Online Community to be a secure and helpful environment for all of the community. So please remember that by using PCFA's Online Community you are agreeing to follow our terms and conditions.