Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

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Do nerves grow back ?

Hi, I’m 49 years old. I had a radical prostatectomy 12 months ago and am now in remission. I was diagnosed Gleeson 3+4=7 post biopsy. My wife and I chose surgery as my treatment to save my life, number one thing. After surgery, my prostate gland was…

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9 Replies · Reply by Joeblow 11 hours ago

Other tests apart from PSA

Hello, my partner has metastasised prostate cancer. His PSA is negligible, however, his back pain is getting much worse, he is very tired all the time and is losing weight. His memory has deteriorated a lot in the last few weeks. He went to the GP…

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4 Replies · Reply by PCFA Admin yesterday

My Cancer Journey So Far

My Cancer journey so far. This is what happened to me, please make of it what you will. Currently 64 years old.   General health has been good up to last year. In 2014 my PSA reading was 3.6 In November 2016 my PSA had risen to 12.  December 2016…

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6 Replies · Reply by robert on Sunday

Generic Tadalafil (Ciallis active)

Hi everyone. I am 3 months post RRP and all going pretty well in terms of continence and sexual health. I have just had my second post-op PSA and it is also “unrecordable” same as the first one. I know I have come through this experience very well…

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31 Replies · Reply by Spike on Saturday

Recurrance after RP

I keep seeing all these posts about t cancer returning after RP. I am 56 am currently on active survellaince (gleeson 3+4) and yet to have mine but intend to go ahead after my next appointment and am a Little concerned about it. Is this common?Have…

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5 Replies · Reply by mcguyver on Friday

Husband recently diagnosed

Hi All,   My husband is 44 years of age, active, fit and recently diagnosed 3 days ago with prostate cancer.  We only have the bone scan results, which came back that he has a lesion on each hip. No MRI or PET scan results yet. We are to see…

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24 Replies · Reply by Easylife Feb 12

Very Confused

Saw my urologist yesterday, he is a very unforthcoming person, so I had a list of questions to ask him. I'm stage 4, my gleson was 7, and my PSA is doubling every 6 months. I'm on ADT, Zoladex every 3 months also on prednislone for polymyalgia…

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2 Replies · Reply by Easylife Feb 12

FATIGUE

Iam 82. I had robot radical prostatectomy, blureteroscopy & retrograde pyleogram 5 months ago in September 201 at a major private hospital in Sydney. I was progressing well until early December 2019 when fatigue overtook me. It remains unchanged in…

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0 Replies

Stage 4 update.

My good news just got even better. My PSA had been stable at 0.07 since April 2019, my recent blood test on 29 January gave a PSA reading of 0.06. This probably just reflects a bit of random variation in measurements but I won’t let facts interfere…

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5 Replies · Reply by Barry Feb 12

House Rules

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Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

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