Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

To view this forum you will need to join PCFA's Online Community.  

It is free and easy to join our Online Community - click here to sign up.

Already a member of the Online Community? Click here to sign in

Latest Discussions

Invitation to share my journey

Hi All, I hope everyone is doing well, under the circumstances.  I thought it may be helpful to share my blog.  It's about my journey with prostate cancer. I'm 48, three kids, Gleason 3+4 and had radical prostatectomy via robot at the end of…

Read more…
4 Replies · Reply by GraemeO 19 hours ago

Penile Shrinkage

Diagnosed June 2014 , T2c Gleeson 3+3=6 While my urologist did make a passing comment about penile shrinkage after the radical prostatectomy and suggested I talk with a men's sexual help specialist, I was totally unprepared for the results.  I am…

Read more…
48 Replies · Reply by nick on Thursday

When to talk to an Oncologist?

Greetings all, I had prostate removal in May 18 aged 58 following a 4+3=7 biopsy result. My first post op psa was 0.04, followed by two readings at 0.03. Today the reading had jumped to 0.07. The urologist wants another psa test in 3 months before…

Read more…
4 Replies · Reply by Andrew Jun 19

Husband recently diagnosed

Hi All,   My husband is 44 years of age, active, fit and recently diagnosed 3 days ago with prostate cancer.  We only have the bone scan results, which came back that he has a lesion on each hip. No MRI or PET scan results yet. We are to see…

Read more…
18 Replies · Reply by SteveCavill Jun 19

Intimacy

Hi all Would love hear how other couples are doing with intimacy. My partner had a radical prostectomy 5 years ago and has recovered really well and is able to have intercourse without medications which has been wonderful but did take 18mths to 2…

Read more…
15 Replies · Reply by rose Jun 18

Seeking reassurance.

G'Day all, I am 61 year of age, have a PSA reading of 7.8 and after an MRI scan have been diagnosed with prostate cancer. According to the scan, the right lobe is very enlarged with a slight sign of change to the left side. My main issue is not…

Read more…
55 Replies · Reply by Peter D Jun 17

Active surveillance option

Gday I am 58 and was told two weeks ago that I had prostate cancer. Bone and ct scans have confirmed the cancer is localised. I had 5 positive core samples from 14 with a Gleason score of 6 (grade1) and a PSA of 4.9. When I had my initial…

Read more…
10 Replies · Reply by Damo Jun 17

Informing sons of family history

Hi.  I was recently diagnosed with low grade prostate cancer, Gleason 6. Now under active surveillance with urologist.  My father and brother also developed prostate cancer.  I have four adult sons, I have been informed by Attila on this site that…

Read more…
6 Replies · Reply by Ian Jun 13

House Rules

To help keep this forum a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum. For further information please see our terms and conditions.

Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice.  If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.

No commercial or promotional activity. While members may share information about resources they have found helpful, the PCFA Online Community forum should not be used for the promotion of goods and services. This includes commercial entities passing themselves off as individuals and people who frequently post links to external websites.

Be kind to each other - many people using the forum are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.

Speak your mind freely, but please be sensitive to the feelings and experiences of others - you might not always agree, but you can agree to disagree in a peaceful manner.

If you or someone you know is suffering from mental health issues, such as depression or anxiety, we encourage you to seek assistance and contact Beyond Blue Tel:1300 224 636  or Lifeline Tel:13 11 14 

Don't use offensive language - if a user is found to be using offensive language during their conversations the moderators reserve the right to edit the thread, without warning.

Don't use all capital letters in your posts - it's considered ‘shouting' online and it makes posts difficult to read.

Give each other the benefit of the doubt - please remember that it is all too easy for the tone and meaning of posts to be misinterpreted. Think carefully before replying to a discussion. Likewise it is important to remember that things written rather than said can feel much stronger, so please bear this in mind when reading other people's messages.

Please respect the moderators - their job is to keep the forum safe and constructive so that everybody gets to have his or her fair say.

Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.

Don't start a new topic if your post relates to an existing one - reply to the existing thread instead. Make sure you reply to the appropriate post, not just the last post in the thread.

Please try not to use abbreviations - Please try to use correct punctuation in your posts – long sentences with no commas or full stops can be confusing and difficult to read.

Read what's already on the forum before posting - you may be repeating what others have already said or asked.

We want PCFA's Online Community to be a secure and helpful environment for all of the community. So please remember that by using PCFA's Online Community you are agreeing to follow our terms and conditions.