Community Forum

Our Community Forum is supportive space for community members to share their prostate cancer experiences, connect with others or simply read through the conversations posted.

To view this forum you will need to join PCFA's Online Community.  

It is free and easy to join our Online Community - click here to sign up.

Already a member of the Online Community? Click here to sign in

Transurethral Hyperthermia

Just updating the Forum since having Transurethral Hyperthermia in Germany in February 2018. The treatment lasted 5 days. It included 2 three hour sessions of Transurethral Hyperthermia (TUH) and 5 one hour daily sessions of Hyperthermia. There was…

Read more…
30 Replies · Reply by LEOR yesterday

Penile Shrinkage

Diagnosed June 2014 , T2c Gleeson 3+3=6 While my urologist did make a passing comment about penile shrinkage after the radical prostatectomy and suggested I talk with a men's sexual help specialist, I was totally unprepared for the results.  I am…

Read more…
53 Replies · Reply by Mnemone on Tuesday

Coronavirus and cancer

The Prostate Cancer Foundation of Australia understands that men affected by prostate cancer and their families may have questions about cancer and COVID19 (Coronavirus). We have created a number of Coronavirus and Cancer Factsheets. These are…

Read more…
0 Replies

No orgasm

Hi all. I'm 46 and had a radical prostatectomy just under 4 weeks ago. I'm still getting erections (not as strong as they were, but strong enough). My libido has remained strong, and I've been chomping at the bit to get back into it! Surgeon said we…

Read more…
14 Replies · Reply by Glenn on Sunday

Ongoing problems

Hi all,I had a robotic prostatectomy in September 2018 and am still experiencing severe urinary problems. Night time frequency is the biggest of these with occasional symptoms usually associated with urinary infections (tests alway negative for…

Read more…
1 Reply · Reply by Luasaigh Apr 2

Costs of Treatment

I'd just like to ask how can the average person afford all this treatment?  I've been reading for days about the various treatment options we might have but I've come to the conclusion it all boils down to what you can afford, not what the best…

Read more…
26 Replies · Reply by Graham Wiese Apr 2

The story so far

My first PSA test (2011) at the age of 48 came back at 3.2, I decided to get tested because my father has prostate cancer which was found when he was 75 and at the time of writing this my father is living an active life at the age of 90. On…

Read more…
13 Replies · Reply by username1 Apr 2

CAVERJECT Supplies

A heads-up for users: After visiting and phoning 6 different pharmacies, I have been told that 20 mcg Caverject will not be available until the end of February 2020.That blows my experiment, of increased frequency of use, out of the water..A couple…

Read more…
6 Replies · Reply by Luasaigh Mar 31

House Rules

To help keep this forum a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum. For further information please see our terms and conditions.

Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice.  If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.

No commercial or promotional activity. While members may share information about resources they have found helpful, the PCFA Online Community forum should not be used for the promotion of goods and services. This includes commercial entities passing themselves off as individuals and people who frequently post links to external websites.

Be kind to each other - many people using the forum are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.

Speak your mind freely, but please be sensitive to the feelings and experiences of others - you might not always agree, but you can agree to disagree in a peaceful manner.

If you or someone you know is suffering from mental health issues, such as depression or anxiety, we encourage you to seek assistance and contact Beyond Blue Tel:1300 224 636  or Lifeline Tel:13 11 14 

Don't use offensive language - if a user is found to be using offensive language during their conversations the moderators reserve the right to edit the thread, without warning.

Don't use all capital letters in your posts - it's considered ‘shouting' online and it makes posts difficult to read.

Give each other the benefit of the doubt - please remember that it is all too easy for the tone and meaning of posts to be misinterpreted. Think carefully before replying to a discussion. Likewise it is important to remember that things written rather than said can feel much stronger, so please bear this in mind when reading other people's messages.

Please respect the moderators - their job is to keep the forum safe and constructive so that everybody gets to have his or her fair say.

Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.

Don't start a new topic if your post relates to an existing one - reply to the existing thread instead. Make sure you reply to the appropriate post, not just the last post in the thread.

Please try not to use abbreviations - Please try to use correct punctuation in your posts – long sentences with no commas or full stops can be confusing and difficult to read.

Read what's already on the forum before posting - you may be repeating what others have already said or asked.

We want PCFA's Online Community to be a secure and helpful environment for all of the community. So please remember that by using PCFA's Online Community you are agreeing to follow our terms and conditions.