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Non-metastatic Castrate Resistant Prostate Cancer (NM-CRPC) Online Survey

Chris_McNamara
Community Manager
Community Manager
0 0 82

Invitation letter:

Prostate Cancer Foundation of Australia (PCFA) is collaborating with RTI Health Solutions (RTI-HS), a non-profit research organization located in Research Triangle Park, North Carolina in the United States, to help recruit patients to participate in an online survey. RTI-HS is developing and administering a survey instrument to elicit and quantify treatment preferences among people with prostate cancer. We were wondering if you would be interested in the paid study below.

We are looking for patients with a diagnosis of non-metastatic castration-resistant prostate cancer (NM-CRPC) defined as those with prostate cancer who are surgically or medically castrated and have rising prostate-specific antigen (PSA) levels despite surgical or medical castration (on continuous androgen-deprivation therapy).

Participation will involve an online survey taken from your own home that will last approximately 20 to 25 minutes and you will be asked questions about your experiences with NM-CRPC and treatments for NM-CRPC. This research study does not involve any medication. Your decision to take part in this study is completely voluntary and any personal information provided will be kept confidential. No selling or solicitation will result from participation. We will comply with all relevant laws protecting your personal data with respect to anonymity and confidentiality.

Participants that meet the inclusion criteria and complete the survey will be compensated approximately $4 to $5 AUD for their time.

To learn more about this study, or to find out if you are eligible, send an email to researchAU@surveyengine.com

We hope that you find this experience to be a valuable way to provide feedback regarding your experience as a prostate cancer patient.

If you have any questions, please do not hesitate to contact us at researchAU@surveyengine.com

Thank you for considering participation!

House Rules

To help keep this community a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum, research blog or video gallery.

For further information please see our terms and conditions, and to contact the Online Community team please email onlinecommunity@pcfa.org.au or call 1800 22 00 99.

Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.

Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice.  If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.

No commercial or promotional activity. While members may share information about resources they have found helpful, the PCFA Online Community forum should not be used for the promotion of goods and services. This includes commercial entities passing themselves off as individuals and people who frequently post links to external health professionals or other services.

Be kind to each other - many people using the community are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.

If you or someone you know is suffering from mental health issues, such as depression or anxiety, we encourage you to seek assistance and contact Beyond Blue Tel:1300 224 636 or Lifeline Tel:13 11 14

Speak your mind freely, but please be sensitive to the feelings and experiences of others - you might not always agree, but you can agree to disagree in a peaceful manner.

Don't use offensive language -if a user is found to be using offensive language during their conversations the moderators reserve the right to edit the thread, without warning.

Don't use all capital letters in your posts - it's considered ‘shouting' online and it makes posts difficult to read.

Give each other the benefit of the doubt - please remember that it is all too easy for the tone and meaning of posts to be misinterpreted. Think carefully before replying to a discussion. it It is important to remember that things written rather than said can feel much stronger, so please bear this in mind when reading other people's messages.

Please respect the moderators - their job is to keep the forum safe and constructive so that everybody gets to have his or her fair say.

Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.

Read what's already on the forum before posting - you may be repeating what others have already said or asked.

We want PCFA's Online Community to be a secure and helpful environment for all of the community. So please remember that by using PCFA's Online Community you are agreeing to follow our terms and conditions.