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Chris_McNamara
Community Manager
Community Manager

Join us this today at 11am AEDT as Professor Jeff Dunn AO interviews USANZ President and leading urologist A/Prof Prem Rashid about his latest book.

Your Guide to Prostate Cancer: The disease, treatment options and outcomes (4th edition), provides an in-depth, yet simple to follow guide on prostate cancer, highlighting treatment options through the various stages, and providing relevant information to help improve quality of life.

You can watch the video below once it’s live.

We’re proud to partner with A/Prof Rashid to launch his new book which we know will be a vital resource for so many men and health professionals.  

To purchase a copy of the book, visit https://bit.ly/3xLwZ0t.  

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Chris_McNamara
Community Manager
Community Manager

Let's Talk About Prostate Cancer: Toowoomba Awareness Event

(25th November, 3.30pm - 4.30pm)

 

This is your chance to get in front of the experts!

 

Over their lifetime, 1 in 6 Australian men will be diagnosed with prostate cancer. 75% of Australians don’t know the PSA test guidelines and alarmingly, only 36% of prostate cancers are detected at the earliest stage, when they can be effectively treated. This needs to change!

Join us and listen to our expert panel including Dr Devang Desai (Urologist), Jo Hiscock (Prostate Cancer Specialist Nurse), Corey Pendlebury (Men’s Health Physiotherapist) and Alan Hill a local men’s health advocate and prostate cancer survivor, as they discuss all aspects of prostate cancer at this FREE special event for the Toowoomba region.

 

To register for the event click the link below:

https://www.eventbrite.com.au/e/lets-talk-about-prostate-cancer-toowoomba-awareness-event-tickets-20... 

 

For more information contact:

Christopher McNamara from the PCFA on Christopher.McNamara@pcfa.org.au

3:30pm - 4.30pm: Awareness presentations & Afternoon tea.

 

*Hosted by the Toowoomba Prostate Cancer Support Group

*Supported by the Prostate Cancer Foundation of Australia

*Sponsored by Boston Scientific

To get involved with the PCFA or to find more support and information, go to our website: www.pcfa.org.au or call us on 1800 22 00 99

 

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Chris_McNamara
Community Manager
Community Manager

What is Active Surveillance, and is it a good treatment option for you?

Active Surveillance is increasingly being recommended as a management option for low-risk prostate cancer, in order to avoid unnecessary and invasive treatments when it is clinically safe to do so. Estimates suggest about 60% of low-risk prostate cancers in Australia are managed with Active Surveillance.

Join Professor Declan Murphy from the Peter McCallum Centre in Melbourne and Ian Henderson a PCFA Prostate Cancer Specialist Nurse from the Royal Hobart Hospital as they discuss Active Surveillance as a management option for men diagnosed with low-risk prostate cancer.

Register now to hear about the latest evidence, the NAVIGATE clinical trial, and whether Active Surveillance is right for you and your diagnosis.

Register here: https://us02web.zoom.us/webinar/register/WN_zd0W0yH9SB2eMI0Vr7AfVA 

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Chris_McNamara
Community Manager
Community Manager

MindOnLine: A mindfulness program for people with breast, bowel, or prostate cancer.

Click through for more details on this study - 

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Chris_McNamara
Community Manager
Community Manager

PCFA is pleased to announce nominations are now open for the 2021 Max Gardner Awards. Click on the link below for further information.

https://pcfa.org.au/about-us/awards/max-gardner-award/

As many of you would be aware, the Max Gardner Award for Distinguished Service is the most prestigious award presented by PCFA. It is awarded to an individual member of the Network who has made an outstanding and significant contribution to reducing the impact of prostate cancer on Australian men, their partners and families, recognising the diversity of the Australian community. This award is a peer-based form of recognition for PCFA Network members who are currently an official Ambassador, in a Support Group Leader role or an active member of an affiliated support group.

I encourage you to share this message with your networks and look forward to receiving nominations, celebrating and recognising the fantastic work of our PCFA Network Members across the country.

To assist I have also attached the Max Gardner Award FAQ document and Nomination Forms.

Nominations need to be submitted by COB Monday 20th  December 2021 via email to supportnetwork@pcfa.org.au or via Australia Post mail as below,

 

Att: Jim Lloyd

Prostate Cancer Foundation of Australia

PO Box 499 St Leonards NSW 1590.

 

If you have any further questions please feel free to contact Debra Garroun orJim Lloyd via Network Helpline 1800 00 22 98.

 

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Chris_McNamara
Community Manager
Community Manager

To find out more and to register --> https://redcap.sydney.edu.au/surveys/?s=THFKFWHW74 

“What are your thoughts on filling out health forms?

Researchers at the University of Sydney are running a study to explore your thoughts on a pictorial version of a scale that measures health symptoms. 

If you:

  • Are aged 18 years and older
  • Have low English health literacy levels OR are from a culturally and linguistically diverse background (i.e. non-English-speaking background)
  • Have existing or previous cancer experience 
  • Are able to provide informed consent

We would like to talk to you!

To find out more, visit: < https://redcap.sydney.edu.au/surveys/?s=THFKFWHW74>”

 

For Arabic: https://redcap.sydney.edu.au/surveys/?s=ERFR4NY8R8

For Chinese: https://redcap.sydney.edu.au/surveys/?s=CXXCDHXJWX

For Vietnamese: https://redcap.sydney.edu.au/surveys/?s=AP9MWR8WXP

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Chris_McNamara
Community Manager
Community Manager

WEBINAR SERIES - PROSTATE CANCER 
Urination troubles after Surgery & Radiation Therapy 
 
WEBINAR DATE: SATURDAY 2ND OCTOBER 2021 TIME: 1 PM to 3 PM (AEST) 
 
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Chris_McNamara
Community Manager
Community Manager

fb icon.jpgIcon Cancer Center are hosting a Facebook live event this Wednesday:
 
An open and honest discussion about the pros and cons of different treatment options for prostate cancer, including benefits, risks and common side effects associated with surgery and radiation therapy.
 
This free online event will be hosted by Icon Group Medical Director Ian Irving with special guests Radiation Oncologist Dr Andrew See, Urological Surgeon A/Prof Jeremy Grummet and Prostate Cancer Specialist Nurse Miranda Dibdin.
 
If you or your family are impacted by prostate cancer and you would like to know more about the latest treatments for prostate cancer, we invite you to join us on Wednesday September 22 from 6:00pm-7:00pm AEST.
 
For more information and to register head to the event page: https://fb.me/e/2BUcf3eBc 
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Chris_McNamara
Community Manager
Community Manager

PCFA_VCC_Logo_RGB_2021.png

Community Conversations is launching at 10:00 am today!

Together for the Long Run: Virtual Community Conversations 2021

PCFA’s Virtual Community Conversations 2021 will bring together experts and consumers from around Australia to share knowledge, the latest on research and treatment options, and strengthen prostate cancer control. Importantly, it will mark 25 years of progress towards our mission to defeat prostate cancer, with a focus on the actions we can take today to improve survivorship tomorrow.

Learn more about prostate cancer. Every stage. Every treatment.

While this year’s conference looks a little different being held virtually, we look forward to having you join us for an informative and insightful event. Together, we can be here for Australian men and families for the long run.


RSVP today

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Chris_McNamara
Community Manager
Community Manager

WEBINAR SERIES - PROSTATE CANCER 
Urination troubles after Surgery & Radiation Therapy 
 
Dr Vincent Tse is an Associate Professor of Urology at Macquarie University and Sydney University. He works at both the Concord and Macquarie University Hospitals. 
 
He is a functional urologist, so he has a special interest in the management of male and female incontinence, bladder, prostate, and pelvic floor problems. He has been invited both nationally and internationally as visiting surgeon and guest speaker and published two books and authored over 100 book chapters, publications, and conference abstracts in this field. 
 
A major part of his practice is the insertion of urethral slings and artificial urinary sphincters as well as the treatment of urethral strictures after surgery and radiation. 
 
WEBINAR DATE: SATURDAY 2ND OCTOBER 2021 TIME: 1 PM to 3 PM (AEST) 
 
HOSTS: Dr Kalli Spencer & Dr Gary Morrison Shine A Light - Australia LGBTQIA+ Cancer Support Group 
 
REGISTRATION LINK: 
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Chris_McNamara
Community Manager
Community Manager

MindOnLine: A mindfulness program for people with breast, bowel or prostate cancer.

Click through for more details on this study - 

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Chris_McNamara
Community Manager
Community Manager

PCFA_VCC_Logo_RGB_2021.png

Together for the Long Run: Virtual Community Conversations 2021

(https://www.accelevents.com/e/virtualcommunityconversations2021)

10:00-3:30, Friday, September 17, 2021

Register for your (virtual) front-row seat to Community Conversations 2021!

Community Conversations 2021 will bring together experts and consumers from around Australia to share knowledge, the latest on research and treatment options, and strengthen prostate cancer control. Importantly, it will mark 25 years of progress towards our mission to defeat prostate cancer, with a focus on the actions we can take today to improve survivorship tomorrow.

Whether you work with prostate cancer patients, or have been impacted personally, this online event is for you.

RESERVE YOUR SEAT NOW!

 

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Chris_McNamara
Community Manager
Community Manager

Look Good Feel Better is a free national community service program, run by the Cancer Patients Foundation, dedicated to teaching cancer patients how to manage the appearance-related side-effects caused by treatment for any type of cancer.  the last 18 months have been emotionally tough and isolating on everyone, but even more so on those who are dealing with a cancer diagnosis. LGFB is hosting a range of FREE workshops throughout Prostate Cancer Awareness Month.... 

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Chris_McNamara
Community Manager
Community Manager

Brachytherapy for Prostate Cancer: Where does it fit in your journey? 

REGISTRATIONS OPEN -  Brachytherapy for prostate cancer: Where does it fit in your journey?

Date: Tuesday 7th September

Time: 2:00pm AEDT

Featuring Dr Jo Bucci (Radiation Oncologist) and Dr David Malouff (Urologist).

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Chris_McNamara
Community Manager
Community Manager

PCFA is working in partnership with another charity called the Centre for Community-Driven Research (CCDR) to listen to your experience with prostate cancer. The study will include an online questionnaire that will take approximately 20 minutes to complete, as well as a structured interview by telephone that takes approximately 30 – 45 minutes. The structured interview is conducted with one of CCDR's nurses and is a great opportunity for people to talk about and document their experience to benefit others in the future. CCDR does a lot of these kinds of studies, and in past studies, participants have found that participating in the study made them feel good because they had the chance to reflect on their experience and talk about it, and also help others in the future.

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Chris_McNamara
Community Manager
Community Manager

New ACT volunteers provide mateship to prostate cancer patients

Men newly diagnosed with prostate cancer in the ACT will now have mates they can turn to for support, thanks to a new program by Prostate Cancer Foundation of Australia. 

Launched this week, the MatesCONNECT program connects newly diagnosed men with trained volunteers who have been through the disease in an effort to provide more local support services. 

To be connected to one of our volunteers simply call us on 1800 22 00 99 or fill in the online self-referral form HERE

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Chris_McNamara
Community Manager
Community Manager

PCSG header email Galvao (1).png

Can exercise really help after a prostate cancer diagnosis? Research has found that exercise not only has physical benefits for men with prostate cancer and treatment-related symptoms, but it also helps to reduce symptoms of depression and anxiety.

Professor Daniel Galvão will be joining us for an educational webinar, providing an in-depth look at how the use of exercise physiology can aid with prostate cancer management from Androgen Deprivation Therapy side effects to managing fatigue........

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Chris_McNamara
Community Manager
Community Manager

PCFA is working in partnership with another charity called the Centre for Community-Driven Research (CCDR) to listen to your experience with prostate cancer. The study will include an online questionnaire that will take approximately 20 minutes to complete, as well as a structured interview by telephone that takes approximately 30 – 45 minutes. The structured interview is conducted with one of CCDR's nurses and is a great opportunity for people to talk about and document their experience to benefit others in the future. CCDR does a lot of these kinds of studies, and in past studies, participants have found that participating in the study made them feel good because they had the chance to reflect on their experience and talk about it, and also help others in the future.

This is what one participant had to say about the study so far:

"I wasn't expecting this but after the interview, I just felt better. I actually really enjoyed participating in it and it's probably the first time anyone's really taken the time to ask me what it's been like for me. I felt like I'd really been heard"

Once complete, the study report is made publicly available and we use it to inform government and other decision-makers about what is important to men diagnosed with prostate cancer and their families. On that note, family members are welcome to participate also!

For more information or to register, go to www.cc-dr.org/prostate/

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Chris_McNamara
Community Manager
Community Manager

Have you had treatment for prostate cancer in the past 12 months?

Our team is currently doing a research study exploring people’s experiences with physiotherapy management in prostate cancer. We are looking for people who are interested in sharing their experiences.

It does not matter if you have not seen a physiotherapist – we would still like to hear from you.

If you are interested in participating or would like more information, please contact:

For Melbourne based patients

 

For regional Victoria based patients

 

 

 

Alesha Sayner

 

Kath Nichols

Physiotherapist/Study coordinator

 

Senior Clinician Physiotherapist

Email: alesha.sayner@bhs.org.au

 

Email: Kath.Nichols@nhw.org.au

Phone: 0437 859 580

 

Phone: 03 57 225333

 

 

 

 

Participation is voluntary.

This project has been reviewed and approved by the Melbourne Health Human Research Ethics Committee (HREC) – Study number 2019.107.

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Study Name: Physiotherapy management in prostate cancer: A qualitative study of enablers, barriers and unmet needs

Document: Appendix 1Study flyer, Version & date: version 3, dated 06/08/2020, HREC 2019.107; WH local governance 24/11/2020       

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Chris_McNamara
Community Manager
Community Manager

 

This Continence Foundation of Australia webinar will explore men’s health in relation to continence and the pelvic floor.

The panel of health professionals and a consumer with personal experience will explore:

  • Why the pelvic floor and pelvic floor muscle exercises are so important for men throughout the lifespan
  • How exercise and prostate surgery impact the pelvic floor
  • How the pelvic floor affects sexual function
  • How exercise can impact the pelvic floor.

Online: 22nd June - 1830-1930 AEDT

Click here to register for this webinar!

Click here to access the PCFA resource "Understanding Urinary and Bowel Side Effects"

Click here to access the PCFA and Australian Physiotherapy resource booklet "Physiotherapy before an...

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Chris_McNamara
Community Manager
Community Manager

Tuesday 18th May 6:30pm - 7:30pm - Register here: https://kapara.rdbk.com.au/landers/e63f02.html 

This webinar will explore ‘intimacy and continence – what to do when incontinence joins you in the bedroom’. 

Incontinence can impact one’s self-confidence, affecting intimacy, sexuality and relationships. In this webinar we will explore challenges that can arise, including discussing or raising incontinence with a (potential) partner, how to manage the feelings of embarrassment, fear and the frustrations that can be experienced, practical issues, how these may be addressed, and where to seek help. This will be a panel discussion with a range of experts in the field, as well as people with personal experience. 

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Chris_McNamara
Community Manager
Community Manager

Since COVID-19, we’ve seen the need for more phone-based support options for men impacted by prostate cancer. In response, Prostate Cancer Foundation of Australia has launched a new peer-support service on the Gold Coast this week.  Click through to check out more --> 

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Chris_McNamara
Community Manager
Community Manager

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TUESDAY 11th MAY 2:00pm

There are a range of treatments for erectile dysfunction (ED). It is very important that you discuss your options with your healthcare team. Your options involve taking medications or using devices to help your erectile function. These may be offered to you individually or as a combination.

Dr Greg Malone, a USANZ Urologist at Brisbane Urology Clinic, works in the specialty field of prostate cancer management and the sub-specialty of sexual rehabilitation following prostate cancer treatment. Dr Malone is highly experienced in the management of erectile dysfunction and practices in a wide range of treatment options for men including medications, injection therapies and surgery including penile prosthesis.

CLICK HERE TO REGISTER FOR THIS EVENT

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Chris_McNamara
Community Manager
Community Manager

If you are currently undergoing treatment for prostate cancer, it's important to talk to your treatment team about your eligibility for COVID-19 vaccines.

You can also call our Telenursing Service on 1800 22 00 99 for more information about your options.

 

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Chris_McNamara
Community Manager
Community Manager

Call someone you can trust. Talk to a Prostate Cancer Specialist Nurse who understands what you're going through.

Australian men diagnosed with prostate cancer can now pick up the phone to access immediate specialist support, following the launch of a nationwide telenursing service run by the Prostate Cancer Foundation of Australia.

The new telehealth service, staffed by prostate cancer specialist nurses, provides a critical lifeline to the 17,000 men diagnosed with prostate cancer in Australia each year, and their families, significantly reducing isolation and barriers to accessing support.

Men and their families can speak with a specialist nurse by calling 1800 22 00 99, Monday to Friday.

You can view the media release here! 

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Chris_McNamara
Community Manager
Community Manager

 

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Join us at 2pm AEDT on Thursday March 18 as we embark on the Voyage to Survival.

The STARGATE Project is the first project of its kind in the world to publish a comprehensive data set explaining how the prostate cancer burden in your street or town compares to the national average.

TO REGISTER CLICK HERE 

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Chris_McNamara
Community Manager
Community Manager

Penile Rehabilitation.png

 

Wednesday, March 17th at 12:00pm AEDT (Sydney/Canberra/Melbourne)

Click here to register for the event

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Chris_McNamara
Community Manager
Community Manager

Today is World Cancer Day and we at the PCFA are proud to release our new suite of resources for men and their families affected by prostate cancer. The new resources are available on our website under the awareness tab: 

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Chris_McNamara
Community Manager
Community Manager

We are currently recruiting MatesCONNECT Gold Coast Volunteers. If you have a lived experience of prostate cancer and are passionate about supporting other men, we would love to hear from you!

With over 600 Gold Coast men receiving a diagnosis of prostate cancer each year it is a program of need for the region!

Please read the position description, complete the application form and email it to us at MatesCONNECT@pcfa.org.au Applications close Sunday 14th February. 

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