Cancer Council NSW is launching a research project that aims to identify system improvements in cancer care and create practical solutions to support those impacted by cancer in NSW.

“Why are my PSA levels rising again, even though I’ve had my prostate removed?

Prostate Cancer Foundation Australia is supporting CaPPRe, an independent research organisation, who are researching treatment and healthcare experiences of people diagnosed with prostate cancer.

CaPPRe are working on behalf of a pharmaceutical company to better understand the experiences of people living with prostate cancer, with a view to improving the healthcare pathway. Your participation is valuable in understanding the impact of prostate cancer on people’s lives.

Do you have prostate cancer? You may be eligible for a study which aims to learn more about patient information sources, internet-use and digital health literacy. We are looking for participants, even if you do not use the internet or technology in your day-to-day life.

You are warmly invited to participate in Deakin University, IPAN's free seminar/webinar on 7 November on Exercise, nutrition and brain health in prostate cancer.

You’re invited to attend an exclusive book launch to meet Australian author Tim Baker this Sunday (August 21) at the Brisbane Square Library from 11am to 12pm.

More info https://www.eventbrite.com.au/e/meet-tim-baker-brisbane-square-library-tickets-384295978617

The Translational Research Institute (TRI) in Brisbane is hosting a Consumer and Community Involvement Event on Wednesday 17^th August from 11am – 1pm to encourage more people to get involved in their research projects, including prostate cancer research...

Missed our latest webinar? You can now watch it online here: https://www.youtube.com/watch?v=RucMzlsDD6w&t=4s...

PCFA has partnered with the University of Southern Queensland (USQ) to develop, trial and evaluate a nurse led survivorship intervention for men on Androgen Deprivation Therapy (ADT), also known as Hormone Therapy.

If you’ve started hormone therapy in the last 3 months (or are about to start), we would love to hear from you. We are seeking people to take part in an interview which should take no longer than 30-40 minutes of your time to help us better understand the impact of survivorship care interventions.

This Saturday, join us for the inaugural 2022 ProsTIC Preceptorship Consumer Session. Held from 1.30pm to 3pm AEDT (April 2, 2022), the virtual consumer session will provide the latest information on PSMA therapy, metastatic prostate cancer treatment, and current support services.

Join us on Tuesday (March 15, 2022) from 2:15pm to 3:15pm AEDT for the first in an ongoing series of Consumer Advocacy Discussion Forums for men and families facing prostate cancer, and add your voice to the debate. Places are limited so register now to secure your spot.

TENA is looking for men to participate in an upcoming product trial which aims to help improve their incontinence products to ensure they’re meeting expectation.  

Anyone who takes part in the trial will also be gifted with a 40% off site wide discount code that can be used 3 times on www.tena.com.au, as well as a $100 GiftPay gift card.

What they’re looking for:

• Men who currently experience light or moderate incontinence 

What it will involve:

• Trailing 2X reusable incontinence underwear products over a two-week period
• Providing check-ins and evaluations with TENA, including a 30-minute pre-trial task, daily short surveys and a final wrap-up task.

All answers will be completely anonymous.

If you’d be interested in taking part, please take this survey to check your eligibility, then the team at TENA and FiftyFive5 (their agency) will be in touch: https://bit.ly/3AAC4Kw

Join us this today at 11am AEDT as Professor Jeff Dunn AO interviews USANZ President and leading urologist A/Prof Prem Rashid about his latest book.

Your Guide to Prostate Cancer: The disease, treatment options and outcomes (4th edition), provides an in-depth, yet simple to follow guide on prostate cancer, highlighting treatment options through the various stages, and providing relevant information to help improve quality of life.

You can watch the video below once it’s live.

We’re proud to partner with A/Prof Rashid to launch his new book which we know will be a vital resource for so many men and health professionals.  

To purchase a copy of the book, visit https://bit.ly/3xLwZ0t.  

Let's Talk About Prostate Cancer: Toowoomba Awareness Event

(25th November, 3.30pm - 4.30pm)

This is your chance to get in front of the experts!

Over their lifetime, 1 in 6 Australian men will be diagnosed with prostate cancer. 75% of Australians don’t know the PSA test guidelines and alarmingly, only 36% of prostate cancers are detected at the earliest stage, when they can be effectively treated. This needs to change!

Join us and listen to our expert panel including Dr Devang Desai (Urologist), Jo Hiscock (Prostate Cancer Specialist Nurse), Corey Pendlebury (Men’s Health Physiotherapist) and Alan Hill a local men’s health advocate and prostate cancer survivor, as they discuss all aspects of prostate cancer at this FREE special event for the Toowoomba region.

To register for the event click the link below:

https://www.eventbrite.com.au/e/lets-talk-about-prostate-cancer-toowoomba-awareness-event-tickets-20... 

For more information contact:

Christopher McNamara from the PCFA on Christopher.McNamara@pcfa.org.au

3:30pm - 4.30pm: Awareness presentations & Afternoon tea.

*Hosted by the Toowoomba Prostate Cancer Support Group

*Supported by the Prostate Cancer Foundation of Australia

*Sponsored by Boston Scientific

To get involved with the PCFA or to find more support and information, go to our website: www.pcfa.org.au or call us on 1800 22 00 99

What is Active Surveillance, and is it a good treatment option for you?

Active Surveillance is increasingly being recommended as a management option for low-risk prostate cancer, in order to avoid unnecessary and invasive treatments when it is clinically safe to do so. Estimates suggest about 60% of low-risk prostate cancers in Australia are managed with Active Surveillance.

Join Professor Declan Murphy from the Peter McCallum Centre in Melbourne and Ian Henderson a PCFA Prostate Cancer Specialist Nurse from the Royal Hobart Hospital as they discuss Active Surveillance as a management option for men diagnosed with low-risk prostate cancer.

Register now to hear about the latest evidence, the NAVIGATE clinical trial, and whether Active Surveillance is right for you and your diagnosis.

Register here: https://us02web.zoom.us/webinar/register/WN_zd0W0yH9SB2eMI0Vr7AfVA 

MindOnLine: A mindfulness program for people with breast, bowel, or prostate cancer.

Click through for more details on this study - 

PCFA is pleased to announce nominations are now open for the 2021 Max Gardner Awards. Click on the link below for further information.

https://pcfa.org.au/about-us/awards/max-gardner-award/

As many of you would be aware, the Max Gardner Award for Distinguished Service is the most prestigious award presented by PCFA. It is awarded to an individual member of the Network who has made an outstanding and significant contribution to reducing the impact of prostate cancer on Australian men, their partners and families, recognising the diversity of the Australian community. This award is a peer-based form of recognition for PCFA Network members who are currently an official Ambassador, in a Support Group Leader role or an active member of an affiliated support group.

I encourage you to share this message with your networks and look forward to receiving nominations, celebrating and recognising the fantastic work of our PCFA Network Members across the country.

To assist I have also attached the Max Gardner Award FAQ document and Nomination Forms.

Nominations need to be submitted by COB Monday 20^th  December 2021 via email to supportnetwork@pcfa.org.au or via Australia Post mail as below,

Att: Jim Lloyd

Prostate Cancer Foundation of Australia

PO Box 499 St Leonards NSW 1590.

If you have any further questions please feel free to contact Debra Garroun orJim Lloyd via Network Helpline 1800 00 22 98.

To find out more and to register --> https://redcap.sydney.edu.au/surveys/?s=THFKFWHW74 

“What are your thoughts on filling out health forms?

Researchers at the University of Sydney are running a study to explore your thoughts on a pictorial version of a scale that measures health symptoms. 

If you:

• Are aged 18 years and older
• Have low English health literacy levels OR are from a culturally and linguistically diverse background (i.e. non-English-speaking background)
• Have existing or previous cancer experience 
• Are able to provide informed consent

We would like to talk to you!

To find out more, visit: < https://redcap.sydney.edu.au/surveys/?s=THFKFWHW74>”

For Arabic: https://redcap.sydney.edu.au/surveys/?s=ERFR4NY8R8

For Chinese: https://redcap.sydney.edu.au/surveys/?s=CXXCDHXJWX

For Vietnamese: https://redcap.sydney.edu.au/surveys/?s=AP9MWR8WXP

Community Conversations is launching at 10:00 am today!

PCFA’s Virtual Community Conversations 2021 will bring together experts and consumers from around Australia to share knowledge, the latest on research and treatment options, and strengthen prostate cancer control. Importantly, it will mark 25 years of progress towards our mission to defeat prostate cancer, with a focus on the actions we can take today to improve survivorship tomorrow.

Learn more about prostate cancer. Every stage. Every treatment.

While this year’s conference looks a little different being held virtually, we look forward to having you join us for an informative and insightful event. Together, we can be here for Australian men and families for the long run.

RSVP today

MindOnLine: A mindfulness program for people with breast, bowel or prostate cancer.

Click through for more details on this study - 

Together for the Long Run: Virtual Community Conversations 2021

(https://www.accelevents.com/e/virtualcommunityconversations2021)

10:00-3:30, Friday, September 17, 2021

Register for your (virtual) front-row seat to Community Conversations 2021!

Community Conversations 2021 will bring together experts and consumers from around Australia to share knowledge, the latest on research and treatment options, and strengthen prostate cancer control. Importantly, it will mark 25 years of progress towards our mission to defeat prostate cancer, with a focus on the actions we can take today to improve survivorship tomorrow.

Whether you work with prostate cancer patients, or have been impacted personally, this online event is for you.

RESERVE YOUR SEAT NOW!

Look Good Feel Better is a free national community service program, run by the Cancer Patients Foundation, dedicated to teaching cancer patients how to manage the appearance-related side-effects caused by treatment for any type of cancer.  the last 18 months have been emotionally tough and isolating on everyone, but even more so on those who are dealing with a cancer diagnosis. LGFB is hosting a range of FREE workshops throughout Prostate Cancer Awareness Month.... 

Brachytherapy for Prostate Cancer: Where does it fit in your journey? 

REGISTRATIONS OPEN -  Brachytherapy for prostate cancer: Where does it fit in your journey?

Date: Tuesday 7th September

Time: 2:00pm AEDT

Featuring Dr Jo Bucci (Radiation Oncologist) and Dr David Malouff (Urologist).

PCFA is working in partnership with another charity called the Centre for Community-Driven Research (CCDR) to listen to your experience with prostate cancer. The study will include an online questionnaire that will take approximately 20 minutes to complete, as well as a structured interview by telephone that takes approximately 30 – 45 minutes. The structured interview is conducted with one of CCDR's nurses and is a great opportunity for people to talk about and document their experience to benefit others in the future. CCDR does a lot of these kinds of studies, and in past studies, participants have found that participating in the study made them feel good because they had the chance to reflect on their experience and talk about it, and also help others in the future.

New ACT volunteers provide mateship to prostate cancer patients

Men newly diagnosed with prostate cancer in the ACT will now have mates they can turn to for support, thanks to a new program by Prostate Cancer Foundation of Australia. 

Launched this week, the MatesCONNECT program connects newly diagnosed men with trained volunteers who have been through the disease in an effort to provide more local support services. 

To be connected to one of our volunteers simply call us on 1800 22 00 99 or fill in the online self-referral form HERE