PCFA is working in partnership with another charity called the Centre for Community-Driven Research (CCDR) to listen to your experience with prostate cancer. The study will include an online questionnaire that will take approximately 20 minutes to complete, as well as a structured interview by telephone that takes approximately 30 – 45 minutes. The structured interview is conducted with one of CCDR's nurses and is a great opportunity for people to talk about and document their experience to benefit others in the future. CCDR does a lot of these kinds of studies, and in past studies, participants have found that participating in the study made them feel good because they had the chance to reflect on their experience and talk about it, and also help others in the future.
This is what one participant had to say about the study so far:
"I wasn't expecting this but after the interview, I just felt better. I actually really enjoyed participating in it and it's probably the first time anyone's really taken the time to ask me what it's been like for me. I felt like I'd really been heard"
Once complete, the study report is made publicly available and we use it to inform government and other decision-makers about what is important to men diagnosed with prostate cancer and their families. On that note, family members are welcome to participate also!
This webinar will explore ‘intimacy and continence – what to do when incontinence joins you in the bedroom’.
Incontinence can impact one’s self-confidence, affecting intimacy, sexuality and relationships. In this webinar we will explore challenges that can arise, including discussing or raising incontinence with a (potential) partner, how to manage the feelings of embarrassment, fear and the frustrations that can be experienced, practical issues, how these may be addressed, and where to seek help. This will be a panel discussion with a range of experts in the field, as well as people with personal experience.
Since COVID-19, we’ve seen the need for more phone-based support options for men impacted by prostate cancer. In response, Prostate Cancer Foundation of Australia has launched a new peer-support service on the Gold Coast this week. Click through to check out more -->
There are a range of treatments for erectile dysfunction (ED). It is very important that you discuss your options with your healthcare team. Your options involve taking medications or using devices to help your erectile function. These may be offered to you individually or as a combination.
Dr Greg Malone, a USANZ Urologist at Brisbane Urology Clinic, works in the specialty field of prostate cancer management and the sub-specialty of sexual rehabilitation following prostate cancer treatment. Dr Malone is highly experienced in the management of erectile dysfunction and practices in a wide range of treatment options for men including medications, injection therapies and surgery including penile prosthesis.
Call someone you can trust. Talk to a Prostate Cancer Specialist Nurse who understands what you're going through.
Australian men diagnosed with prostate cancer can now pick up the phone to access immediate specialist support, following the launch of a nationwide telenursing service run by the Prostate Cancer Foundation of Australia.
The new telehealth service, staffed by prostate cancer specialist nurses, provides a critical lifeline to the 17,000 men diagnosed with prostate cancer in Australia each year, and their families, significantly reducing isolation and barriers to accessing support.
Men and their families can speak with a specialist nurse by calling 1800 22 00 99, Monday to Friday.
Join us at 2pm AEDT on Thursday March 18 as we embark on the Voyage to Survival.
The STARGATE Project is the first project of its kind in the world to publish a comprehensive data set explaining how the prostate cancer burden in your street or town compares to the national average.
Today is World Cancer Day and we at the PCFA are proud to release our new suite of resources for men and their families affected by prostate cancer. The new resources are available on our website under the awareness tab:
On behalf of the PCFA Online Community team, I would like to thank you for your considerable contributions to the community throughout 2020 in maintaining this online peer-supported forum. Without a doubt, this year has been incredibly challenging with the COVID-19 pandemic disrupting many prostate cancer pathways and access to resources and experts.
Despite the difficult year that we have encountered, it has been a year in which we have been able to achieve so much together. COVID presented us with problems but also provided a number of solutions and achievements - and some of those achievements include: the survivorship education webinar series (Available in the video blog section), support groups meetings via Zoom videoconferencing, Ask the Experts Webcasts on Urinary difficulties and Prostate Cancer Survivorship Essentials (Available in the video blog section), digital Ambassador presentations via Zoom, post-production of a prostate cancer podcast series with the University of Southern Queensland, the first ever Virtual Community Conversations event, the pilot of the MatesCONNECT telephone-based peer support program in WA along with the transition of the Online Community to this new and engaging platform. Transitioning the Online Community to this new platform was a mammoth effort and we appreciate everyone's patience during this time and value feedback you may have on any aspects of the community.
In closing out the year I would like to thank each and every Online Community member for their contribution and feedback on improving practice throughout the year. So much has been achieved this year that will change the way of how we interact in our communities in the future. This pivot to online will also benefit men and their families affected by prostate cancer well into the future with PCFA education and engagement of the community. I look forward to supporting everyone in the PCFA Online Community in 2021.
My best wishes to you and your loved ones this festive season. Stay safe. Merry Christmas!
Epworth and Icon are collaborating to lead the way in prostate cancer patient-centred care with a new precision target-based treatment - Focal Brachytherapy.
Join the experts as they educate prostate cancer patients on this new treatment option which uses MRI to identify prostate cancer, and targeted radiotherapy to treat only the tumour, instead of the whole prostate, to keep side effects to a bare minimum.
Australian behavioural scientist and chief executive of Prostate Cancer Foundation of Australia, Professor Jeff Dunn AO, has been voted President-Elect of the Union for International Cancer Control (UICC).
MatesCONNECT is a phone-based peer support service for men affected by prostate cancer in Western Australia.
If you’ve recently been diagnosed with prostate cancer, our MatesCONNECT service can connect you to a trained volunteer who understands what you’re going through. All of our volunteers have been through prostate cancer.
You can get practical advice on surgery and treatment, and the side effects of treatment, such as incontinence, erectile dysfunction, and coping with Androgen Deprivation Therapy.
The service is accessible wherever you live in WA. Simply call us on 1800 22 00 99.
We’ll take your details and find a volunteer who suits your situation. While our volunteers can’t give you medical advice, they can provide you with an understanding of what to expect and give you an insight into living with prostate cancer.
Download and print our flyer to promote this valuable service in your community.
Advanced Prostate Cancer Phone In Support Meetings: The
Advanced Prostate Cancer Support Group out of Brisbane, is pleased to announce the phone in support group meetings. The meetings occur on the fourth Friday of every month. The next meeting is Friday 25th September.
Erectile dysfunction medication now more affordable for Australian men.
On the 27th August, the Urological Association of Australia and New Zealand (USANZ) made a statement on tadalafil (Cialis) now off-patent and more affordable for Australian Men suffering from erectile dysfunction.
Continuing on from the great work JimJimJimJim were doing with the Advanced Prostate Cancer Support Group out of Brisbane, we are pleased to announce the continuation of the phone in support group meetings.
This service is available to anyone who is affected by advanced prostate cancer. Feel free to follow the directions below and join in on a meeting.
For the first time, we’re bringing together experts from New York, Vancouver, Sydney, and Perth to talk about the challenges of prostate cancer survivorship.
We’re calling it out – men impacted by prostate cancer face specific challenges that are seldom addressed in mainstream healthcare delivery. Our latest research pinpoints seven priority actions as a practical platform for change.
Register earlyto receive a copy of our Survivorship Essentials Framework and send your thoughts to our panellists before the meeting.
We are currently recruiting MatesCONNECT volunteers. If you have lived experience of prostate cancer and are passionate about supporting other men, we would love to hear from you!
MatesCONNECT: a phone-based peer support service that will be delivered to men affected by prostate cancer in Western Australia, thanks to a generous grant from Woodside Community Fund. MatesCONNECT will be accessible to men wherever they live in Western Australia, with a particular focus on supporting men's health in regional and rural areas.
If you live in Western Australia and would like to participate, please click on the link to the MatescONNECT website for information on how to apply to become a volunteer.
The Prostate Cancer Foundation of Australia with valued feedback from the Online Community has transitioned the Online Community to a new more user-friendly and engaging platform. Our Online Community has been developed to provide an accessible space for you to connect with others in the PCFA network