We all got the memo that sleep is foundational for good health, right?
Yet, it remains easy to overlook the importance of sleep amid the challenges of managing a prostate cancer diagnosis. Even within my own self-care mantra M.E.D.S (meditation, exercise, diet, sleep) I have probably paid too little attention to its final pillar.
There are several reasons for this. Sleep is so elemental, like the air we breathe, that it’s easy to overlook it while managing the more dramatic elements of prostate cancer and its treatment – the mood swings, challenges to sexuality and masculinity, incontinence issues, relationship challenges, simple survival. The good news is there is much we can do to improve our sleep.
Recent studies highlight that sleep disturbances are an underappreciated element of prostate cancer care and why it’s so critical.
“Sleep deficiency is linked to chronic health problems, including heart disease, kidney disease, high blood pressure, diabetes, stroke, obesity, and depression. It is also linked to accidents that can result in injury or death,” the Association of American Medical Colleges noted in a June 2023 article.
A 2022 study, Sleep disturbances are underappreciated in prostate cancer survivorship, reported: “The prevalence of sleep disturbances among prostate cancer (PCa) survivors, and extent of urologist involvement in sleep care are not well-studied.” Over 300 PCa survivors and urologists were surveyed about sleep disturbances and survivorship care practices. Researchers found: “Most PCa survivors had sleep disturbances, including 50.9% with poor sleep quality, 18.0% with clinical/severe insomnia, and 36.5% at high-risk for sleep apnoea. Few urologists routinely screened for sleep disturbances, as recommended in national cancer survivorship guidelines.”
Their conclusions were clear: “Optimal PCa survivorship care should incorporate screening for sleep disturbances, addressing comorbid factors affecting sleep and referring to sleep medicine when appropriate.”
What makes this an even more pressing issue is that sleep disturbances and resultant quality of life concerns also plague caregivers of those with prostate cancer. In the 2022 study, Poor sleep health and quality of life among caregivers of patients with prostate cancer, researchers surveyed 81 caregivers of patients with PCa and found 77% suffered poor sleep, 22% met the criteria for clinical insomnia, and 43% used sleep medication at least once a week.
“Our results support the hypothesis that poor sleep quality is prevalent in caregivers of patients with PCa, and they may be at increased risk for undiagnosed sleep disorders such as insomnia or sleep apnoea,” the study notes.
“Additionally, we found that caregivers of patients with PCa had worse psychological well‐being than the general population and experienced high levels of caregiver stress. This corroborates previous research showing higher rates of depression and anxiety among PCa caregivers, stemming from feelings of guilt, concerns about treatment outcomes, and financial worries. Further research is warranted to examine whether improvements in the management of sleep disorders and healthy sleep practices can enhance quality of life among cancer caregivers.”
In my own experience, the MEDS self-care mantra is effective because each element supports the others. So, meditation, exercise and diet can all help promote good sleep. For me, that means if I quieten the mind with a short meditation in the evening, I enjoy much better quality of sleep. If I try and avoid eating too late into the night, abstain from coffee after midday, reduce alcohol consumption, and end the day tired and “sleep hungry” from physical exercise, all these things promote good sleep.
All the usual guidelines around good “sleep hygiene” apply, of course. Getting off tech devices a good hour before bedtime, not having a mobile phone by your bed or a TV in the bedroom, preserving your bed as a sanctuary exclusively for sleep (not working on a laptop in bed for instance). Not becoming anxious when you are having trouble sleeping is easier said than done, but regarding it as simply a chance to rest body and mind, practicing a short meditation if unable to sleep, has become a healthy habit for me. Medicinal cannabis has also been a huge help for me. Without it, I might wake three to four times a night for a trip to the loo. With it, I might wake once or twice and occasionally sleep through.
If even the word “sleep” is loaded for you because of past issues, replace it with “rest”. And if sleep issues persist, seek advice from you GP.
REFERENCES
Gong, F., Loeb, S., Siu, K., Myrie, A., Orstad, S., Kenfield, S. A., Morgans, A., Thakker, S., Robbins, R., Carter, P., Jean-Louis, G., Nolasco, T. S., Byrne, N., & Gupta, N. (2023). Sleep disturbances are underappreciated in prostate cancer survivorship. Prostate cancer and prostatic diseases, 26(1), 210–212. https://doi.org/10.1038/s41391-022-00630-6
Thakker, S., Robbins, R., Carter, P., Jean-Louis, G., Siu, K., Sanchez Nolasco, T., Byrne, N., Orstad, S. L., Myrie, A., & Loeb, S. (2022). Poor sleep health and quality of life among caregivers of patients with prostate cancer. BJUI compass, 3(5), 331–333. https://doi.org/10.1002/bco2.157
Tim Baker is an award-winning author, journalist and storyteller specialising in surfing history and culture, working across a wide variety of media from books and magazines to film, video, and theatre. Some of his most notable books include “Occy”, a national bestseller and chosen by the Australia Council as one of “50 Books You can’t Put Down” in 2008, and “The Rip Curl Story” which documents the rise of the iconic Australian surf brand to mark its 50th anniversary in 2019. Tim is a former editor of Tracks and Surfing Life magazines. He has twice won the Surfing Australia Hall of Fame Culture Award.
Tim was diagnosed with stage 4, metastatic prostate cancer in 2015 with a Gleason score 9. He was told he had just five years of reasonable health left, but eight years on, at 58, he’s still surfing, writing, and enjoying being a dad. His latest book, Patting the Shark, also documents his cancer journey and will be published in August. Tim will be sharing weekly insights into his journey to help other men who have also been impacted by prostate cancer.
Prostate Cancer Specialist Telenursing Service
If your life has been impacted by prostate cancer, our Specialist Telenursing Service is available to help. If you would like to reach out to the PCFA Prostate Cancer Specialist Telenurse Service for any questions you have about your prostate cancer experience, please phone 1800 22 00 99 Monday - Friday 9am - 5pm, Wednesday 10am-8pm (AEDT).
Prostate Cancer Support Groups
PCFA is proud to have a national network of affiliated support groups in each state and territory of Australia consisting of men and women who have a passion for assisting others who encounter prostate cancer. This network is made up of over 170 affiliated groups who meet locally to provide one-to-one support, giving a vision of life and hope after treatment. Call us on 1800 22 00 99 to find your local group.
MatesCONNECT Telephone-based peer support
MatesCONNECT is a telephone-based peer support program for men affected by prostate cancer. If you’ve recently been diagnosed with prostate cancer, our MatesCONNECT service can connect you to a trained volunteer who understands what you’re going through. All of our volunteers have been through prostate cancer. Simply call us on 1800 22 00 99 to be connected with a volunteer.
Newly diagnosed? or need to find more information? Access the PCFA resources here.
To help keep this community a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum, research blog or video gallery. For further information please see our terms and conditions.
Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.
Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice. If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.
No commercial or promotional activity. While members may share information about resources they have found helpful, the PCFA Online Community forum should not be used for the promotion of goods and services. This includes commercial entities passing themselves off as individuals and people who frequently post links to external health professionals or other services.
Be kind to each other - many people using the community are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.
If you or someone you know is suffering from mental health issues, such as depression or anxiety, we encourage you to seek assistance and contact Beyond Blue Tel:1300 224 636 or Lifeline Tel:13 11 14
Speak your mind freely, but please be sensitive to the feelings and experiences of others - you might not always agree, but you can agree to disagree in a peaceful manner.
Don't use offensive language -if a user is found to be using offensive language during their conversations the moderators reserve the right to edit the thread, without warning.
Don't use all capital letters in your posts - it's considered ‘shouting' online and it makes posts difficult to read.
Give each other the benefit of the doubt - please remember that it is all too easy for the tone and meaning of posts to be misinterpreted. Think carefully before replying to a discussion. it It is important to remember that things written rather than said can feel much stronger, so please bear this in mind when reading other people's messages.
Please respect the moderators - their job is to keep the forum safe and constructive so that everybody gets to have his or her fair say.
Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.
Read what's already on the forum before posting - you may be repeating what others have already said or asked.
We want PCFA's Online Community to be a secure and helpful environment for all of the community. So please remember that by using PCFA's Online Community you are agreeing to follow our terms and conditions.