Among the many potential side effects of hormone therapy, (or Androgen Deprivation Therapy), one that gets perhaps too little attention is the risk of cognitive decline. Numerous studies have indicated an increasing risk of cognitive impairment from long term ADT.
While many men struggle with the loss of libido and sexual function, muscle mass and bone density, increased risk of cardio-vascular disease and diabetes and depression, it’s easy to overlook the slow creep of impaired cognition. Like the proverbial frog immersed in gradually heated water, by the time you register the danger it might be too late.
This is an especially critical issue given that survival times even for advanced prostate cancer continue to RISE, because obviously we don’t want to just live, but to live well. The good news is, there is much you can do to maintain cognitive function and, happily enough, many of these strategies address the other side effects of ADT.
In my own case, I’d barely registered the risk of cognitive decline amid the numerous other impacts of prostate cancer and its treatments until it became unignorable. I’d been invited to the Ubud Writers Festival in 2017, nearly two years after my diagnosis, a welcome ray of light in an otherwise bleak time.
My delight at being back in the Island of the Gods and its spiritual heart in Ubud was only marred by the confronting realisation that I had trouble working out where I needed to be and when. Given a schedule of my four festival appearances over a week, I found I could barely keep track of the various times, dates and venues and at one point was reduced to tears staring uncomprehendingly at the spreadsheet I’d been emailed by festival organisers, as if it was in a foreign language.
The prospect of ongoing cognitive decline is bad news for anyone but was especially sub-optimal as someone who writes for a living. Fortunately, that decline seems to have slowed or stopped completely, thanks to a variety of management strategies:
Eight years on, I continue to make a living as a writer, meditate and exercise daily, eat and sleep well and seem to be managing my cognitive health effectively. One thing I wish I’d done at the start was establish a baseline for cognitive function with any one of a range of assessment tools for cognition. Speak to your GP to see if he can arrange such a baseline test for you.
A cancer diagnosis and its treatments hurl all kinds of stressors at our brains. We need to consciously look after it.
About the Author
Tim Baker is an award-winning author, journalist and storyteller specialising in surfing history and culture, working across a wide variety of media from books and magazines to film, video, and theatre. Some of his most notable books include “Occy”, a national bestseller and chosen by the Australia Council as one of “50 Books You can’t Put Down” in 2008, and “The Rip Curl Story” which documents the rise of the iconic Australian surf brand to mark its 50th anniversary in 2019. Tim is a former editor of Tracks and Surfing Life magazines. He has twice won the Surfing Australia Hall of Fame Culture Award.
Tim was diagnosed with stage 4, metastatic prostate cancer in 2015 with a Gleason score 9. He was told he had just five years of reasonable health left, but eight years on, at 58, he’s still surfing, writing, and enjoying being a dad. His latest book, Patting the Shark, also documents his cancer journey and will be published in August. Tim will be sharing weekly insights into his journey to help other men who have also been impacted by prostate cancer.
Prostate Cancer Specialist Telenursing Service
If your life has been impacted by prostate cancer, our Specialist Telenursing Service is available to help. If you would like to reach out to the PCFA Prostate Cancer Specialist Telenurse Service for any questions you have about your prostate cancer experience, please phone 1800 22 00 99 Monday - Friday 9am - 5pm, Wednesday 10am-8pm (AEDT).
Prostate Cancer Support Groups
PCFA is proud to have a national network of affiliated support groups in each state and territory of Australia consisting of men and women who have a passion for assisting others who encounter prostate cancer. This network is made up of over 170 affiliated groups who meet locally to provide one-to-one support, giving a vision of life and hope after treatment. Call us on 1800 22 00 99 to find your local group.
MatesCONNECT Telephone-based peer support
MatesCONNECT is a telephone-based peer support program for men affected by prostate cancer. If you’ve recently been diagnosed with prostate cancer, our MatesCONNECT service can connect you to a trained volunteer who understands what you’re going through. All of our volunteers have been through prostate cancer. Simply call us on 1800 22 00 99 to be connected with a volunteer.
Newly diagnosed? or need to find more information? Access the PCFA resources here.
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