I’ve been on a bit of a binge lately. But, fear not, it hasn’t involved booze, recreational stimulants or late nights doing the cockroach in sweaty nightclubs. Rather, my vice has been reading an indecent number of cancer memoirs as part of my creative writing PhD studies.

By Tim Baker | Among the many potential side effects of hormone therapy, (or Androgen Deprivation Therapy), one that gets perhaps too little attention is the risk of cognitive decline. 

By Tim Baker | Greetings from beautiful WA, where I’m fresh from a delightful weekend at the Margaret River Readers and Writers Festival.

By Tim Baker | When I was first diagnosed back in 2015, one of the most helpful books I read was “When Things Fall Apart” by Pedma Chodron, a Zen Buddhist monk, full of deep wisdom on dealing with adversity.

By Tim Baker | Last week, I had the great privilege of being involved in a patient forum for men living with prostate cancer at the Australian Prostate Centre in Melbourne.

By Tim Baker | So, here’s a curly question I haven’t seen addressed in any of the prostate cancer literature I’ve come across so far.

By Tim Baker | It’s nearly eight years since I was diagnosed with metastatic prostate cancer and nearly a year since my cancer memoir, Patting The Shark, was published.

By Tim Baker | I can think of plenty of reasons not to do a road trip from the Gold Coast to Melbourne and back, about 40 hours and 4000 km round trip, with a stage four prostate cancer diagnosis...

By Tim Baker | Fresh back from the Newcastle Writers Festival and brimming with new inspiration from the writerly marketplace of ideas, as always when I attend these events.

By Tim Baker | I was enjoying a bit of friendly banter with one of my prostate cancer comrades in the UK on Twitter recently (as you do) when the topic of diet came up.

By Tim Baker | In the tool kit for managing the distress and trauma of a cancer diagnosis, have you ever considered the role of writing therapy?

By Tim Baker | You hear and read a lot in oncology about the dangers of offering false hope to cancer patients. From spurious folk remedies and snake oil to the uncertain benefits of nutrition and emotional healing...

By Tim Baker | Artificial intelligence (AI) has the potential to transform many areas of healthcare, including cancer care. But can it replace medical professionals? Tim Baker shares his thoughts. 

Are you aware of the Australian Healthcare Charter of Rights?

My recent cancer memoir Patting The Shark was written as part of a creative writing PhD at Griffith University. The book forms what’s called the creative component of my PhD and now it’s done, I’ve turned my attention to the academic component, the Exegesis.

Over time, I’ve realised this journey is a marathon not a sprint.

I’d be the first to admit, I came out of the blocks a bit hard, abruptly and radically overhauling my diet, exercising like a maniac, meditating like a monk, researching whacky folk remedies and overpriced herbs and supplements, desperate to do all I could to remain fit and healthy.

Living with cancer does predispose me to bouts of nostalgia, the “before times” when life felt free and easy, without this mortal threat lurking in the shadows.

Prostate cancer is often referred to as a couples’ disease because it impacts the partner of the person with the diagnosis so acutely (if they have a partner).

Never been a big fan of New Year’s resolutions, myself. It always feels like setting yourself up to fail, or scolding yourself for not doing enough, being virtuous enough, being enough.

PCFA is about to start a review of Australia's guidelines for prostate cancer testing, harnessing our chance to change the way we manage the disease. 

Last week we brought together some of the country's leading clinicians to talk about new and emerging treatment options that have vastly improved the way we diagnose and treat prostate cancer. 

The vodcast touches on robotic and open prostatectomies, advances in radiotherapy, and the frontlines of research into side-effect management and treatment of erectile dysfunction and incontinence.

If you have any questions, or need support, call 1800 22 00 99 to speak with a PCFA Telenurse.

You’ve probably heard these three words a fair bit in recent years. You might even be sick of hearing them, but you are probably going to have to get used to it.

In the context of cancer care, most would agree the standard of care you receive should not be determined by your bank balance, ethnicity, postcode, religion, gender identity or sexual orientation. This has been a hot topic at recent oncology conferences and for good reason.

We all need our happy place, somewhere we can get lost in a sense of something greater than the self... For me, it’s the ocean and I’ve never been more grateful to be a surfer than since my diagnosis, even as my performance levels decline with the impacts of the meds and ageing.

Nominations for Prostate Cancer Foundation of Australia’s 2022 Max Gardner Awards are now officially open.

Your correspondent was recently invited to take part in the fabulous Ubud Writers and Readers Festival, for its 2022 return after two years of COVID cancellations. The festival’s theme was “Uniting Humanity” and, with writers from all over the world baring their souls, I’d say it achieved its aim.

For something a little different, herewith a photo essay of my journey, spreading the message of supportive care for men with Prostate Cancer to the world, through my book Patting The Shark.

Changing the health care system is slow, difficult and expensive.

So, I thought I’d save everyone a lot of time, cost and trouble by designing new guidelines for the delivery and management of a prostate cancer diagnosis, based on my admittedly complete absence of medical qualifications, apart from seven years as a prostate cancer patient.

The European Society of Medical Oncology 2022 Conference was hosted in Paris from 9-13 September. Updates from some of the key clinical trials presented at the conference will be discussed in this blog.  

During the COVID 19 pandemic, particularly the strict lockdowns in Victoria, there was a sharp and dramatic drop in cancer diagnoses. And the sharpest and most dramatic drop of all was for prostate cancer, with a 60% reduction in prostate cancer screening in Victoria.

Thank you to everyone who joined us on Thursday for our latest webinar, CANCER, SEX & SIDE-EFFECTS: Managing erectile dysfunction after prostate cancer

If you missed it, you can watch it back here: https://www.youtube.com/watch?v=N1jdTbgDdx0 

Have you ever felt like you have a story to tell just waiting to get out? Or thought journaling or keeping a diary might be a useful way of processing your experiences? Or just felt like getting something off your chest without burdening those around you with your angst?

By Tim Baker

There seems to be a great deal of discussion and academic attention being paid to cancer survivorship these days, which is a welcome development...