PCFA is working in partnership with another charity called the Centre for Community-Driven Research (CCDR) to listen to your experience with prostate cancer. The study will include an online questionnaire that will take approximately 20 minutes to complete, as well as a structured interview by telephone that takes approximately 30 – 45 minutes. The structured interview is conducted with one of CCDR's nurses and is a great opportunity for people to talk about and document their experience to benefit others in the future. CCDR does a lot of these kinds of studies, and in past studies, participants have found that participating in the study made them feel good because they had the chance to reflect on their experience and talk about it, and also help others in the future.
This is what one participant had to say about the study so far:
"I wasn't expecting this but after the interview, I just felt better. I actually really enjoyed participating in it and it's probably the first time anyone's really taken the time to ask me what it's been like for me. I felt like I'd really been heard"
Once complete, the study report is made publicly available and we use it to inform government and other decision-makers about what is important to men diagnosed with prostate cancer and their families. On that note, family members are welcome to participate also!
For more information or to register, go to www.cc-dr.org/prostate/
To help keep this community a welcoming, supportive and caring place we have put together a small list of dos and don'ts for you to think about when posting on our forum, research blog or video gallery.
For further information please see our terms and conditions, and to contact the Online Community team please email onlinecommunity@pcfa.org.au or call 1800 22 00 99.
Adhere to PCFA’s five core values of Integrity, Optimism, Compassion, Respect and Commitment.
Our online forum is for you to share experiences with others and does not contain specific medical, counselling or legal advice. If you require professional advice specific to your individual circumstances we encourage you to see a medical professional, legal professional or counsellor.
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Be kind to each other - many people using the community are going through a difficult time. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time.
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Give each other the benefit of the doubt - please remember that it is all too easy for the tone and meaning of posts to be misinterpreted. Think carefully before replying to a discussion. it It is important to remember that things written rather than said can feel much stronger, so please bear this in mind when reading other people's messages.
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Stay on topic - try to focus on the original topic. In particular, don't change subject in the middle of an existing thread - just start a new thread.
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